Search This Blog

Showing posts with label National Autistic Society. Show all posts
Showing posts with label National Autistic Society. Show all posts

Friday, 5 January 2018

Let's Face It - a free photographic exhibition exploring facial Pareidolia & raising awareness of Autism

I met a lovely lady
Anna is her name
She had some virtual goggles on
As we played an Autism sensory game.

She's a very caring lady
And bright as bright can be
So I'm looking forward to her photo exhibition
To see what she can see.

By viewing inanimate objects
Which look like other things
And seeing the positive aspects of Autism
And the possibilities they bring.

She's reaching out in a non-verbal way
To connect and make people smile
Because communications that make you feel good 
Make life so much more enjoyable and worthwhile.


++++

Anna Vaughan-Spruce's free photographic exhibition is on at the Parochial Hall, Earlswood Road, Redhill RH1 6HE from Friday 19th January (1.30pm - 3.30pm) to Saturday 20th January (11am - 3.00pm).


The event is kindly sponsored by The Henry Smith Charity (Horley), which aims to bring about lasting change to people’s lives, helping them to benefit from and contribute to society.  They achieve this by funding organisations that work with people to reduce social and economic disadvantage.  

++++

According to Wikipedia, Pareidolia is "a psychological phenomenon in which the mind responds to a stimulus, usually an image or a sound, by perceiving a familiar pattern where none exists (e.g. in random data).
Common examples are perceived images of animals, faces, or objects in cloud formations, the Man in the Moon, the Moon rabbithidden messages within recorded music played in reverse or at higher- or lower-than-normal speeds, and hearing indistinct voices in random noise such as that produced by air conditioners or fans."
++++
Anna and I first met at The Autism Show in London in 2017 - we happened to be standing side by side wearing goggles and headphones whilst watching The National Autistic Society's brilliant virtual reality video about the challenges faced by some people on the Autism Spectrum when they go shopping.  
We instantly hit it off.  

As someone who is on the Autism Spectrum, she totally understands the need for the type of planning, organising and decluttering help offered by Rainbow Red and specialist members of APDO (The Association of Professional Declutterers & Organisers), and similar organisations worldwide.
++++

Cherry Rudge of Rainbow Red is delighted to have been invited to contribute to Jo Cooke’s book “Understanding Hoarding” (published by Sheldon Press in 2017), to talk about her experiences as the daughter of a hoarder.

She was a founder Member of APDO’s Hoarding Advisory Team and a member of The Chief Fire Officers Association’s Mental Health (formerly Hoarding) Working Group, and helped organise the first ever UK Hoarding Awareness Week in 2014, attending the event launch at the Houses of Parliament in London.

In 2013 Cherry became APDO’s Chair and Acting President, later stepping down from all her APDO roles in 2014 to care for her father who had Alzheimer’s. 

She became a Dementia Friend in 2015, and devised an ice-breaker form to empower people to discuss with a medical practitioner the affect that clutter, disorganisation and/or hoarding has had on their health, so that the most effective treatment and holistic recovery pathways can be signposted.

Cherry is an advisor to Surrey County Council, Surrey Fire & Rescue Service, and a volunteer at FastMinds ADHD/ASD support group in Kingston-upon-Thames; she helped co-ordinate their participation in the 2016 Gnome Project at Hampton Court Palace

Cherry undertakes regular Continuous Professional Development (CPD) training to enhance the holistic services offered by Rainbow Red, and offers training and workshops to help people understand chronic disorganisation and hoarding behaviours, the types of medical and situational situations that can cause it, and techniques that can help people affected by these complex factors make decisions and take practical, sustainable control of their homes, and their lives.

For further information please contact Cherry Rudge - Phone/Text: 07931 303310 - Email: cherry@rainbowred.co.uk

Monday, 26 May 2014

Clutter/disorganisation & Autism Spectrum Disorder (ASD), Aspergers, Attention Deficit Disorder (ADD/ADHD)

A friend very kindly sent me a recent article from The Guardian newspaper, entitled "A letter to my son....whose flat is filty - the letter you always wanted to write".

The article is in the style of a letter from a Mum to her son, and highlighted for me something I've seen a lot of since I've been a professional organiser: that some of my clients who have difficulty coping with clutter or disorganisation show symptoms related to being on the Autism Spectrum (also known as Autism Spectrum Disorder, or ASD).

And yet - for the most part - my clients don't seem to know it; instead, they often struggle with things like Dyslexia, Dyspraxia, depression or anxiety due to low self-esteem, partly due to their inability to be what I've heard some of them describe as "normal". 

I've heard comments like "I want to have an immaculate house like my neighbours, but I can't seem to get my head around organising things or keeping regular routines" or "people tell me I need to do this or that, but it makes me feel upset and pressured because I find it so difficult to do what others seem to find easy."

Not once have my clients ever said they've been tested for or diagnosed with Autism - a condition that affects more than 10% of adults (about 588,000 people in the UK today) - ADD (Attention Deficit Disorder) or ADHD (Attention Deficit Hyperactivity Disorder).

I find it desperately sad that so many people slip through the diagnosis net - mostly because little was known about Autism and/or ADD/ADHD when they were younger; they've been left to fend for themselves, without the right kind of help or support, or - most likely - were either too embarassed to ask for help, or didn't know there was help available in the first place. 

I belong to The Association of Professional Declutterers & Organisers (apdo-uk), which published a newsletter with useful guidelines for helping people with ADHD get organised.

One of apdo-uk's advisors - Jan Assheton - provides coaching solutions and training relating to ADHD and Asperger's. Jan says "The condition rarely exists alone and may be diagnosed alongside Dyslexia, Dyspraxia, Depression, Anxiety, Asperger's, Obsessive Compulsive Disorder (OCD), Hoarding Disorder and Sleep/Eating Disorders."

I personally believe that many people at the chronic end of the clutter spectrum -who have hoarding disorder (a mental health condition) - are prime examples of vulnerable people affected by these types of conditions, or a combination of these and/or other physical, neurological or mental health problems.

Some hoarders in the past have been unlucky enough to end up suffering the humiliation, embarassment and trauma of having to undergo an enforced major clean-out by Environmental Health and/or eviction - expensive "solutions" which recent evidence proves can do far more harm than good to the recipient, and result in them feeling worse than ever about themselves. 

It can demotivate them from any desire to declutter.  In fact, it can result in making them hoard all over again in no time as a way of trying to control their lives and surround themselves with items to create a "comfort zone" of personal possessions that make them feel better.

Some hoarders have been known to be so traumatised by clean-outs or eviction that they've taken or attempted to take their own lives - if that's not a cry for help or in despair, I don't know what is.

A diagnosis of Autism or ADD/ADHD could have resulted in the type of practical support - for example, training, counselling and/or medication - which could have helped prevent their extreme situation from occuring in the first place, or funding for the services of empathetic, non-judgemental professional organisers to provide motivational support, advice and practical assistance.

Which is one of the reasons why I'm so committed to UK Hoarding Awareness Week, the recent campaign by The Chief Fire Officers Association (CFOA), which I helped to organise.  The aims of the campaign are to:



  • To spread more widely an awareness of hoarding facts                       
  • To promote greater understanding and acceptance across those who can influence change
  • To encourage a stronger tendency for those who can influence change to support and promote at key moments.
By raising awareness of hoarding amongst the likes of GPs, mental health services, social services, Vulnerable Children and Adults Teams, Environmental Health, landlords, housing associations, Citizens Advice and the emergency services, it will hopefully reduce the number of people falling through the hoarding "net", so that they get the right type of help at the right time, and don't have to endure extreme measures which could blight the rest of their lives.

So I urge anyone who has an influence over assessing children's health to look carefully at whether they might be affected by ASD and/or ADD/ADHD; a simple diagnosis could make a HUGE difference to the quality of their lives - and the lives of their loved ones - in the future, and help them live a more cluttered, organised and stress-free life. 

To those of you responsible for providing support to vulnerable adults, I urge you to put yourself in their shoes, and consider having them assessed for ASD and/or ADD/ADHD before making life-changing decisions which could cost more than just money.

As the daughter of a hoarder, I thank you in advance, from the bottom of my undiagnosed ASD/ADD/ADHD heart.


++++
About Autism & ADHD


The National Autistic Society (NAS) is the UK's leading charity for people with autism and their families. According to their website, Autism condition is a complex developmental disability involving a biological or organic defect in the functioning of the brain.  It is a lifelong developmental disability with no cure; children with autism grow up to be adults with autism.

NAS says that Autism affects how a person communicates with, and relates to, other people. It also affects how they make sense of the world around them. It is a spectrum condition, which means that, while all people with autism share certain difficulties, their condition will affect them in different ways. Some people with autism are able to live relatively independent lives but others may have accompanying learning disabilities and need a lifetime of specialist support.


According to NAS, ADHD is a condition related to Autism, that makes a person inattentive, impulsive and hyperactive. An increasing number of children are diagnosed as having both ADHD and autism. Some parents are apparently only diagnosed with ADHD after their children have been diagnosed with autism.
http://www.autism.org.uk/about-autism/related-conditions/adhd-attention-deficit-hyperactivity-disorder.aspx

NAS has developed a framework for understanding and responding to the needs of children and adults on the autism spectrum. The framework is also useful in identifying underlying issues, reducing the disabling effects of the condition and providing a cornerstone for communication. It also forms the basis of all autism-specific staff training and an ethical basis for intervention. The acronym for this framework is SPELL. SPELL stands for Structure, Positive (approaches and expectations), Empathy, Low arousal, Links.

For more information about Autism, Asperger's and ADD/ADHD:




To find a professional organiser for help with decluttering and getting organised, check out apdo-uk's website: www.apdo-uk.co.uk