Search This Blog

Showing posts with label APDO. Show all posts
Showing posts with label APDO. Show all posts

Wednesday, 19 August 2020

Clutter & disorganisation crisis looming for brain-damaged COVID-19 patients?

There's potentially some good news on its way for experienced Professional Organisers and Professional Hoarding Practitioners who work with people with complex needs - we're likely to be even more in demand as a result of COVID-19.

According to an article in The Guardian on 8th July 2020, UK neurologists have published details of mildly affected or recovering Covid-19 patients having serious or potentially fatal brain conditions.


The cases (published in the journal Brain) support a paper recently published in The Journal of Alzheimer's Disease (by an American team of leading neurological experts), which says that some former COVID-19 patients may go on to develop cognitive decline, attention deficit, brain fog, or Alzheimer's disease.  

And that of course means they may (for example):
  • Be left with degenerative COVID-19 related physical health problems that affect them for the rest of their lives
  • End up with PTSD caused by the trauma of having had COVID-19, as well as having to adjust to having physical anxiety, depression or stress-related illness that they may not have had before
  • Find it difficult to maintain their pre-COVID-19 career/employment status, level of income and lifestyle
  • End up finding themselves reliant on the benefits system to be able to pay their bills - assuming there is an appropriate welfare system in place where they live of course...
  • Need to downsize or request council accommodation if their situation becomes too dire (they may even have to relocate to other areas if there's insufficient suitable accommodation available in their area.
  • Lose some of their Executive Functioning (EF) - the daily skills of life that enable us to carry out what "neurotypicals" take for granted, such as:
    • the ability to remember were they put things; 
    • arrive at appointments on time (assuming they remembered to write the appointment in their diary in the first place - assuming they could even find their diary or remembered to look in their diary); 
    • organise their homes (eg. create and maintain effective filing systems for paperwork, photos, emails, etc; 
    • manage their affairs (eg. pay bills on time, arrange repairs to be carried out to fix broken heating, etc)
    • maintain a clean, safe, hygienic and clutter-free living environment
Not that these are good things of course - absolutely not - far from it!  

Life-changing experiences like these can be frustrating, exhausting, depressing, and time-consuming to address.  Especially for individuals who were previously physically active, focussed on career development and fiercely independent.  

And then there's the friends and families who end up becoming carers to them post-COVID.

Without appropriate and timely support, the health and wellbeing of people affected by these kinds of difficulties can rapidly deteriorate, and the consequences can be disastrous.
It's only in the last few years that some local authorities (especially those that have received specialist training from organisations such as Hoarding Disorders UK CICClouds End CIC and Rainbow Red) have begun to understand that issues related to clutter, disorganisation, self-neglect and hoarding behaviours are:
  • Very rarely lifestyle choices
    • Until COVID-19, the chances are that that individuals experiencing these issues had underlying neurological and/or mental health conditions (often undiagnosed).  Post-COVID-19, the difficulties could be related to that issues caused by the Coronavirus, on top of existing problems.
  • Likely to be physical representations of the chaos and overwhelm in a person's life
  • Often made worse by sending in a clearance/cleaning firm, instead of someone who offers a person-centred service
So, why does this mean there's potentially a clutter and disorganisation crisis looming?
Because the bad news is that:
  1. there may be no money to pay for these essential services
  2. There aren't enough of us with sufficient skills and experience of working with people with complex needs to meet demand.  And those of us who do have been inundated with calls since lockdown started - we simply can't keep up (so apologies to all those who we've not yet had a chance to contact).

Health and social care services are likely to be overwhelmed with requests for support from the likes of professionals such as Occupational Therapists, Physiotherapists, support workers, mental health specialists and neurological specialists - all collaborating with Professional Organisers and Professional Hoarding Practitioners - empowering individuals to remain independent for as long as possible.

We predict there could be (for example):
  • inadequate budgeting and training of NHS and local authority personnel to provide specialist person-centred practical support
  • Many people who lose their job due to the deterioration in their health, and who turn to already over-stretched health and social care and/or benefits systems to pay for support
  • enormous competition for already very limited health and social care budgets 
  • an increase in demand for council accommodation
  • an increase in the number of social workers required to deal with increased case-loads
  • an increase in safety issues in the home due to self-neglect, fires; slips, trips and falls; infestations, etc. 
  • an increase in the number of vulnerable people being targeted by unscrupulous scammers and and becoming victims of of cuckooing (when people are unwell they are less able to maintain their properties in which drug dealers take over the home of a vulnerable person in order to use it as a base for county lines drug trafficking. 

All of which could continue for many years to come.

Still, it's reassuring to know that decluttering and organising specialists are likely to at last become an integral part of multi-agency responses and interventions.  Better late than never.

My hope is that by re-training people who have struggled with organising issues the past - and either attended hoarding or clutter support groups or worked with professional practitioners (or both) to develop sustainable coping strategies that  brings order to their lives - we'll end up with a new generation of practitioners as passionate as we are about giving something back to clients who were once like them.

So, if you'd like to know more about attending training to become a Professional Hoarding Practitioner, please please please get in touch.  

Because without your empathy, patience, and ability to motivate, empower and coach people to believe in their ability to take control of their paperwork and their homes, some people won't be able to sort their way out of their mess - which wasn't their fault in the first place....

+++++

To find a Professional Organiser in the UK, check out The Association of Professional Declutterers & Organisers (APDO) website - www.apdo.co.uk



Monday, 2 September 2019

Cherry Rudge & Rainbow Red in the media & newsletters

Cherry Rudge - owner of Rainbow Red - is a pioneer in the UK decluttering and organising industry.

She is proud to have been raising awareness of the importance of using an holistic, person-centred, empathetic, non-judgemental, non-confrontational approach to help people affected by clutter since 2011.

Positions held
Here are a few examples of where you'll find her mentioned in newspapers, magazines, articles or interviews:

September 2019
2nd September - Talk Radio Europe - Breakfast show interview (with Hannah Murray) about hoarding disorder and the Hoarding Ice-Breaker Form (listen to the clip on the Hoarding Ice-Breaker Form website)
https://hoardingicebreakerform.org/newsandevents/


August 2019
24th August - Mail on Sunday - "Hate chucking stuff out?  How to tell if you have a hoarding disorder, and the warning signs to look out for"
https://www.dailymail.co.uk/health/article-7390927/How-tell-hoarding-disorder-warning-signs-look-for.html

18th August - Sunday Telegraph - Stella Magazine - "My dad's dementia healed our broken relationship" 
https://www.telegraph.co.uk/family/life/dads-dementia-healedour-broken-relationship/

January 2019
BBC Surrey Radio - 24th Jan 2019 - talking about Marie Kondo's Netflix decluttering programme, "sparking joy" and how it differs from working with people who have hoarding behaviours
Fast foward to 2hrs 23mins - https://www.bbc.co.uk/sounds/play/p06w8g09

May 2018


May 2017
Thanked for her contribution on the acknowledgement page of Jo Cooke's insightful book "Understanding Hoarding" (published by Sheldon Press).  

  • Diagram of how the ADHD brain works in the context of clutter, disorganisation & hoarding
  • Account of her experiences as the daughter of a hoarder, including clearing his home when he died


January 2017

Mentioned in an article by journalist Toby Walne that was published in The Mail on Sunday and The NZ Herald.

Sept 2016
Getting organised outdoors - article in House Beautiful magazine 

January 2015
Featured in Age UK Mobility's article on "How to Safely Declutter Your Home".


May 2014
Brooklands Radio - Interview - Just Women - 20-May-2014
Promoting UK Hoarding Awareness Week - attending Parliamentary launch

January 2013
House Beautiful Magazine (Feb 2013 issue) - The Big Declutter (decluttering supplement)

Brooklands Radio - Interview - Fabulous Women Show 
15-Jan-2013 http://www.brooklandsradio.co.uk/FabulousWomen/CRudge130115.mp3

October 2013
Cherry's hints and tips are mentioned in an article entitled "Organising Outdoors" in House Beautiful magazine.

November 2012
apdo-uk Newsletter - getting organised for Christmas
http://blog.apdo-uk.co.uk/index.php/2012/11/newsletter-november-2012/

Healthy Planet (charity) - Stuff For Free Event - North London (Waltham Forest) 24-Nov
www.healthyplanet.org/projects/stuff-for-free.aspx

October 2012
Surrey Today - 18-Oct - Transition Ashtead helping people clear out for Christmas
http://www.thisissurreytoday.co.uk/Transition-Ashtead-helping-people-clear-Christmas/story-17108029-detail/story.html#ixzz2LqkNuZy5

September2012
apdo-uk Newsletter - office organisation
http://blog.apdo-uk.co.uk/index.php/2012/09/newsletter-september-2012/






July 2012
apdo-uk Blog - What does it take to get you motivated enough to declutter and get organised?
http://blog.apdo-uk.co.uk/index.php/2012/07/what-does-it-take-to-get-you-motivated-enough-to-declutter-and-get-organised/

June 2012
apdo-uk Newsletter - L of a lesson to beat moving day hell
http://blog.apdo-uk.co.uk/index.php/2012/06/newsletter-june-2012/







April 2012
Anxiety UK (charity) website - Announcing partnership with apdo-uk
http://www.anxietyuk.org.uk/2012/04/anxiety-uk-announces-new-partnership/









March 2012
Snapshot from the YouTube video showing Cherry (APDO's then Marketing & Partnerships Officer) addressing attendees at their annual conference.

February 2012
Serene Healing Blog - Feng Shui & "Mrs Beeton's Book of Household Management"
http://www.serenehealing.co.uk/2012/02/feng-shui-mrs-beetons-book-of-household-management/

March 2011
Radio Wey interview on The Wonderful Wacky Wireless Radio Show - Carers Week
https://soundcloud.com/#jandytimes/show-trailer-for-the-wonderful-wacky-wireless-show

Wednesday, 16 May 2018

Our Adventures in San Francisco for the 18th International Conference on Hoarding & Cluttering

2018 is turning into one heck of a memorable year!  

So far this year I've attended "Organising Matters" - the Annual conference of The Association of Professional Declutterers & Organisers (APDO), plus two conferences on hoarding - one in San Francisco and the other London - and am very much looking forward to a third in Edinburgh in October

Plus our Level 1 Professional Hoarding Practitioner training course has just been launched - starting in July 2018, with more training to follow.


Selfie on the plane
Just after APDO's conference in March, Jo Cooke (of Hoarding Disorders UK CIC), Heather Matuozzo (of Clouds End CIC) and I flew off to San Francisco, full of excitement for our adventure!

Click here for an account that we wrote for APDO's newsletter (The Association of Professional Declutterers & Organisers), outlining the training and conference part of our trip.

The Berkeley City Club Hotel turned out to be the perfect place to stay, as it's less than a 10 minute walk to the conference venue (the University of California Berkeley), and about a 10-15 minute walk to the local Bart train station.   The line goes straight into the City, and it's easy to get from there to the airport too, with only one change.

The ''Little Castle'' was designed by the architect Julia Morgan, and founded in 1927 as The Berkeley Women's City Club. and is a Berkeley City and California State Historical Landmark.  

It has THE most amazing swimming pool, which opens from 5am - perfect for early-bird Jo!



Highlights of the trip for me included:
  • Spending a week in the company of two of the most gorgeous and compassionate women I have ever had the privilege of meeting
  • Not only did we have fabulous fun every single day, the three of us got to talk for an entire week amongst ourselves and with others (who are as passionate as us) about how we can help, support and raise awareness of the dilemas faced by people affected by extreme clutter, disorganisation or hoarding - how great was that?!
  • Meeting the amazing Hilary' Kacser and being mightily impressed by her memorable opening one-woman keynote performance of DisordR, The Play - a moving account of some of PakRat Patty's experiences as a hoarder
  • The pre-conference training by Dr Michael Tompkins, author of “Digging Out” and “The Clinician’s Guide to Severe Hoarding – A Harm Reduction"
  • Learning that the UK is actually ahead of the USA in some respects relating to hoarding.  For example, we have a National Hoarding Awareness Week, whereas campaigns are far more regionalised in the USA
  • Spending quality time with some wonderful folks from the US who are all doing amazing work helping people affected by hoarding (and raising awareness of the issues associated with this debilitating subject), including Marnie Matthews of The Clutter Movement, Eileen Dacey of North Shore Elder Services (near Boston, MA); Christa Tipton of NASWCA Technology Council & Orange County Task Force on Hoarding and Jette Selberg from the San Francisco Bay area.
  • Getting my photo taken with the compulsory hippy flowers in my hair - well, Berkeley was where the movement started, so it had to be done! (thank you Jette for being so thoughtful!)
  • Visiting the Museum of Modern Art in San Francisco
  • Catching one of the famous cable cars (in the pouring rain!), and having a yummy meal in China Town
  • Strolling around art galleries in Oakland 
  • Enjoying eating our way around the World, with delicious food from places like Japan, Korea, Mexico, USA, China, Burma and Eritraea - to name but a few!
  • The fabulous in-flight service from Virgin Atlantic - especially coming home!
Jo, Hilary, Heather, Cherry
So, it's now time to start planning our trip for the next conference.  Sadly I've just missed the 4th Annual Hoarding of Animals Conference in Danvers, Massachusetts (which would have been fascinating), but watch out San Francisco, we'll definitely be back!
Heather, Dr Michael A. Tompkins, Cherry, Jo
Marnie, Cherry, Christa, Jette, Jo, Heather, Eileen






Friday, 5 January 2018

Let's Face It - a free photographic exhibition exploring facial Pareidolia & raising awareness of Autism

I met a lovely lady
Anna is her name
She had some virtual goggles on
As we played an Autism sensory game.

She's a very caring lady
And bright as bright can be
So I'm looking forward to her photo exhibition
To see what she can see.

By viewing inanimate objects
Which look like other things
And seeing the positive aspects of Autism
And the possibilities they bring.

She's reaching out in a non-verbal way
To connect and make people smile
Because communications that make you feel good 
Make life so much more enjoyable and worthwhile.


++++

Anna Vaughan-Spruce's free photographic exhibition is on at the Parochial Hall, Earlswood Road, Redhill RH1 6HE from Friday 19th January (1.30pm - 3.30pm) to Saturday 20th January (11am - 3.00pm).


The event is kindly sponsored by The Henry Smith Charity (Horley), which aims to bring about lasting change to people’s lives, helping them to benefit from and contribute to society.  They achieve this by funding organisations that work with people to reduce social and economic disadvantage.  

++++

According to Wikipedia, Pareidolia is "a psychological phenomenon in which the mind responds to a stimulus, usually an image or a sound, by perceiving a familiar pattern where none exists (e.g. in random data).
Common examples are perceived images of animals, faces, or objects in cloud formations, the Man in the Moon, the Moon rabbithidden messages within recorded music played in reverse or at higher- or lower-than-normal speeds, and hearing indistinct voices in random noise such as that produced by air conditioners or fans."
++++
Anna and I first met at The Autism Show in London in 2017 - we happened to be standing side by side wearing goggles and headphones whilst watching The National Autistic Society's brilliant virtual reality video about the challenges faced by some people on the Autism Spectrum when they go shopping.  
We instantly hit it off.  

As someone who is on the Autism Spectrum, she totally understands the need for the type of planning, organising and decluttering help offered by Rainbow Red and specialist members of APDO (The Association of Professional Declutterers & Organisers), and similar organisations worldwide.
++++

Cherry Rudge of Rainbow Red is delighted to have been invited to contribute to Jo Cooke’s book “Understanding Hoarding” (published by Sheldon Press in 2017), to talk about her experiences as the daughter of a hoarder.

She was a founder Member of APDO’s Hoarding Advisory Team and a member of The Chief Fire Officers Association’s Mental Health (formerly Hoarding) Working Group, and helped organise the first ever UK Hoarding Awareness Week in 2014, attending the event launch at the Houses of Parliament in London.

In 2013 Cherry became APDO’s Chair and Acting President, later stepping down from all her APDO roles in 2014 to care for her father who had Alzheimer’s. 

She became a Dementia Friend in 2015, and devised an ice-breaker form to empower people to discuss with a medical practitioner the affect that clutter, disorganisation and/or hoarding has had on their health, so that the most effective treatment and holistic recovery pathways can be signposted.

Cherry is an advisor to Surrey County Council, Surrey Fire & Rescue Service, and a volunteer at FastMinds ADHD/ASD support group in Kingston-upon-Thames; she helped co-ordinate their participation in the 2016 Gnome Project at Hampton Court Palace

Cherry undertakes regular Continuous Professional Development (CPD) training to enhance the holistic services offered by Rainbow Red, and offers training and workshops to help people understand chronic disorganisation and hoarding behaviours, the types of medical and situational situations that can cause it, and techniques that can help people affected by these complex factors make decisions and take practical, sustainable control of their homes, and their lives.

For further information please contact Cherry Rudge - Phone/Text: 07931 303310 - Email: cherry@rainbowred.co.uk

Thursday, 31 March 2016

How can clutter, disorganisation or hoarding affect our health?

LIFE - Life Isn't For Ever, so treasure it, and yourself and live it WELL!

That was the key message from the workshop that I ran recently at the annual conference of The Association of Professional Declutterers & Organisers UK (APDO) in London. 


Participants (including professional organisers and a recovering-hoarder) came away with a better understanding of:
  • the types of health and wellbeing risks associated with living in a malfunctioning home
  • how ill-health - both physical and mental - can cause clutter, disorganisation and hoarding
  • where to go in the UK for appropriate help and support
I also encouraged professional organisers to tell their clients about the ice-breaker form I devised in 2015 - it will enable them to have a conversation with a medical professional if clutter or disorganisation is affecting their health, or that of a family member or friend.

As the theme of the 2016 conference was "The Power of Letting Go", the workshop included topics like how to let go of stigmas associated with asking for help, by using CBT techniques to feel more confident about being able to ask for help.  Which is why our wise owl is flying the flag for Time To Change England's biggest programme to challenge mental health stigma and discrimination.

One of the workshop participants - Jo Cooke of Berkshire-based Hoarding Disorders UK - said "I came away very inspired by Cherry’s presentation.  Cherry’s workshop was not only well researched and extremely informative. But Cherry also highlighted the crucial facts relating to the implications, impact and regulations surrounding hoarding disorder.  Cherry speaks with confidence and passion.  I came away with some excellent tips on how to help my clients. Cherry is very inspirational.  I would certain recommend attending this workshop. Excellent."

It was the second year in a row that I'd run a workshop at the two-day conference, where this year's speakers included Carl Honoré, globetrotting ambassador for the Slow Movement Canadian organising guru Colette RobicheauGwendoline Alderton from GA Interiors (UK) who talked about Style for Sale like a Professional, and Keren Lerner from Top Left Design who explained How to Create a Killer Website.

For more information about the clutter and health workshop or to book Cherry to run this workshop for your group, please contact: cherry@rainbowred.co.uk or phone 07931 303310.

+++



Cherry Rudge of Surrey-based Rainbow Red is the daughter of a hoarder, so has had personal experience not only of the day-to-day physical, psychological and emotional trials and tribulations faced by families affected by living with too much stuff, but also the sensitivities required to calmly help people declutter and create order out of chaos. 



She is a pioneering member of apdo-uk’s Hoarding Advisory Team, and a member of The Chief Fire Officers Association’s (CFOA) Mental Health & Hoarding Working Group (which organised the first ever UK Hoarding Awareness Week in May 2014).

In addition to 1-2-1 sessions with hoarders and those affected by chronic disorganisation, she offers training and advocacy services and is an advisor to organisations including media production companies, Surrey Fire & Rescue Service, ADHD Support Groups and social landlords.

Originally published in March 2016 - updated in June 2016


Friday, 26 October 2012

Decluttering - from a client's perspective

Recently I was invited to give my first ever decluttering workshop at the Leatherhead Institute in Surrey, so I asked some of my hoarder clients for comments to share with the workshop attendees.  My clients did not disappoint.

Client #1 said:  "(on the decluttering process) - "it was nail-biting"; Afterwards: "it was a Revelation!"

Client #2 said:  "Allow plenty of time - decluttering takes longer than you'd think....."

Client #3 was more forthcoming than I could ever have hoped for, and has kindly allowed me to publish in full what he sent me.  He talks candidly about how he came to declutter, how we met and his progress - I am eternally grateful and flattered for his contribution and candour.

Are you sitting comfortably?  Then he'll begin.....

"An eremitical existence and a tendency to hoard do not conduce to an uncluttered living-space. Possessions tend to take over; it becomes difficult to move around; and even basic cleaning grows difficult and is eventually abandoned. But one’s possessions have a way of becoming one’s family. One knows where all of them came from; each has its associations pleasant or poignant. So it was only when self-consciousness about the state of my house turned to self-disgust that I began decluttering. I did not know that that was what it was called, but even I could see that I did not need five of everything. An enormous amount went via Freecycle and Freegle; one young woman left with sixty-four items of kitchenware on a single occasion. Three step-ladders went, leaving me with only two. One man took away a hundred and fifty engineering bricks in the boot of a saloon car. (I hope he got home safely.)
I have since realized that freecycling is the slowway to clear a house, but it was the way in which I met Cherry Rudge, who came to collect a four-hole punch. I confess that when I later learned that Cherry was a member of the Association of Professional Declutterers and Organisers, I thought she was pulling my leg, or that APDO was an association of one. Now I know better. By that stage my decluttering had slowed down. An enormous amount remained to be done; it still does. I was awed by the scale of what I had to do, and I still am. But Cherry inspired me to keep going. With her occasional (but invaluable) practical help and never-failing encouragement, I am still going, even though an unexpected return to daily commuting has robbed me of time and energy. 

There have been real dividends already. For example, I am able to sit down to a meal for the first time in years (though I still sometimes forget to), and I am close to being able to empty the kitchen completely, ready for rewiring and replastering. Then I shall be able to install the bespoke kitchen units that were made for me years ago and have remained flat-packed in the sitting-room ever since. I can even look forward to the day when I shall be able to cook for friends. By that time, I can believe, the process of purging the Augean stables will have become positively cathartic.
As I say, despite disbelief at the beginning, I have come to know that there are such people as professional declutterers, and that they do really valuable work. I know too that they do more than just help people to declutter: they can provide balm for a troubled soul and help one back to a measure of self-esteem. For that alone I salute Cherry and her colleagues, and wish today’s convocation every success."
Anonymous client, Hersham, Surrey UK
Well, I was delighted to report to my client that the feedback on the decluttering workshop that we received afterwards via the Evaluation Forms proved that the event was indeed a success.  

Unfortunately I'd only had time to read out a small part of his piece - the bit about self-consciousness, bricks and step ladders.  It featured during the section on motivation and procrastination and was certainly well received, with some people expressing shock, others seemingly able to relate to some of what he'd said.

I hope to be able to read out more of the piece at future workshops.  I feel incredibly proud that my fellow professional organising colleagues and I are able to provide help and inspiration which drive people to write with such passion. 

I thank and salute my client - and all decluttering clients.  You inspire us too you know.

+++
Explanation of terminology above shown in bold italics

1.      Eremitical existence - Living the life of a recluse or hermit

2.      Augean stables: Greek myth - the stables (where King Augeas kept 3,000 oxen) hadn't been cleaned for 30 years. Hercules diverted the River Alpheus through them, and cleaned them in a day.

3.      Convocation: A gathering for an event

Home