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Showing posts with label Dementia. Show all posts
Showing posts with label Dementia. Show all posts

Wednesday, 19 August 2020

Clutter & disorganisation crisis looming for brain-damaged COVID-19 patients?

There's potentially some good news on its way for experienced Professional Organisers and Professional Hoarding Practitioners who work with people with complex needs - we're likely to be even more in demand as a result of COVID-19.

According to an article in The Guardian on 8th July 2020, UK neurologists have published details of mildly affected or recovering Covid-19 patients having serious or potentially fatal brain conditions.


The cases (published in the journal Brain) support a paper recently published in The Journal of Alzheimer's Disease (by an American team of leading neurological experts), which says that some former COVID-19 patients may go on to develop cognitive decline, attention deficit, brain fog, or Alzheimer's disease.  

And that of course means they may (for example):
  • Be left with degenerative COVID-19 related physical health problems that affect them for the rest of their lives
  • End up with PTSD caused by the trauma of having had COVID-19, as well as having to adjust to having physical anxiety, depression or stress-related illness that they may not have had before
  • Find it difficult to maintain their pre-COVID-19 career/employment status, level of income and lifestyle
  • End up finding themselves reliant on the benefits system to be able to pay their bills - assuming there is an appropriate welfare system in place where they live of course...
  • Need to downsize or request council accommodation if their situation becomes too dire (they may even have to relocate to other areas if there's insufficient suitable accommodation available in their area.
  • Lose some of their Executive Functioning (EF) - the daily skills of life that enable us to carry out what "neurotypicals" take for granted, such as:
    • the ability to remember were they put things; 
    • arrive at appointments on time (assuming they remembered to write the appointment in their diary in the first place - assuming they could even find their diary or remembered to look in their diary); 
    • organise their homes (eg. create and maintain effective filing systems for paperwork, photos, emails, etc; 
    • manage their affairs (eg. pay bills on time, arrange repairs to be carried out to fix broken heating, etc)
    • maintain a clean, safe, hygienic and clutter-free living environment
Not that these are good things of course - absolutely not - far from it!  

Life-changing experiences like these can be frustrating, exhausting, depressing, and time-consuming to address.  Especially for individuals who were previously physically active, focussed on career development and fiercely independent.  

And then there's the friends and families who end up becoming carers to them post-COVID.

Without appropriate and timely support, the health and wellbeing of people affected by these kinds of difficulties can rapidly deteriorate, and the consequences can be disastrous.
It's only in the last few years that some local authorities (especially those that have received specialist training from organisations such as Hoarding Disorders UK CICClouds End CIC and Rainbow Red) have begun to understand that issues related to clutter, disorganisation, self-neglect and hoarding behaviours are:
  • Very rarely lifestyle choices
    • Until COVID-19, the chances are that that individuals experiencing these issues had underlying neurological and/or mental health conditions (often undiagnosed).  Post-COVID-19, the difficulties could be related to that issues caused by the Coronavirus, on top of existing problems.
  • Likely to be physical representations of the chaos and overwhelm in a person's life
  • Often made worse by sending in a clearance/cleaning firm, instead of someone who offers a person-centred service
So, why does this mean there's potentially a clutter and disorganisation crisis looming?
Because the bad news is that:
  1. there may be no money to pay for these essential services
  2. There aren't enough of us with sufficient skills and experience of working with people with complex needs to meet demand.  And those of us who do have been inundated with calls since lockdown started - we simply can't keep up (so apologies to all those who we've not yet had a chance to contact).

Health and social care services are likely to be overwhelmed with requests for support from the likes of professionals such as Occupational Therapists, Physiotherapists, support workers, mental health specialists and neurological specialists - all collaborating with Professional Organisers and Professional Hoarding Practitioners - empowering individuals to remain independent for as long as possible.

We predict there could be (for example):
  • inadequate budgeting and training of NHS and local authority personnel to provide specialist person-centred practical support
  • Many people who lose their job due to the deterioration in their health, and who turn to already over-stretched health and social care and/or benefits systems to pay for support
  • enormous competition for already very limited health and social care budgets 
  • an increase in demand for council accommodation
  • an increase in the number of social workers required to deal with increased case-loads
  • an increase in safety issues in the home due to self-neglect, fires; slips, trips and falls; infestations, etc. 
  • an increase in the number of vulnerable people being targeted by unscrupulous scammers and and becoming victims of of cuckooing (when people are unwell they are less able to maintain their properties in which drug dealers take over the home of a vulnerable person in order to use it as a base for county lines drug trafficking. 

All of which could continue for many years to come.

Still, it's reassuring to know that decluttering and organising specialists are likely to at last become an integral part of multi-agency responses and interventions.  Better late than never.

My hope is that by re-training people who have struggled with organising issues the past - and either attended hoarding or clutter support groups or worked with professional practitioners (or both) to develop sustainable coping strategies that  brings order to their lives - we'll end up with a new generation of practitioners as passionate as we are about giving something back to clients who were once like them.

So, if you'd like to know more about attending training to become a Professional Hoarding Practitioner, please please please get in touch.  

Because without your empathy, patience, and ability to motivate, empower and coach people to believe in their ability to take control of their paperwork and their homes, some people won't be able to sort their way out of their mess - which wasn't their fault in the first place....

+++++

To find a Professional Organiser in the UK, check out The Association of Professional Declutterers & Organisers (APDO) website - www.apdo.co.uk



Thursday, 31 October 2019

Continuous Professional Development (CPD)

Someone once asked me about what training I've done. So, here are some examples of the main Continuous Professional Development (CPD) training and events I've attended or delivered, books I've read or videos I've watched since 2014.

November 2022
  • Attended Shelter Homelessness & Mental Illness training (online)
October 2022
  • Podcast about the connection between ADHD and hoarding behaviours - for Clouds End CIC https://www.cloudsend.org.uk/podcasts/
September 2022
  • Represented Fastminds Adult ADHD support group at a SW London NHS/local authority Autism Strategy Workshop
December 2021
  • Commissioned to write a Court Report
November 2021
  • Attended HHSRS training: Damp, Mould and Excess Cold (CIEH)
  • Delivered hoarding awareness training to Occupational Therapists at St Peter's Hospital (Chertsey)
November 2021
  • Delivered hoarding awareness training to Surrey Fire & Rescue Service (Prevention & Fire Investigation teams)

November 2019

  • Attended Psychosocial skills and support training for Adults with ADHD (UKAAN - UK Adult ADHD Network)

October 2019
  • Attended Basic Welfare Benefits An Introduction (Central Training, London)
  • Attended Advocacy Training Level 2 (Advocacy Training)
  • Co-delivered Stage 3 Professional Hoarding Practitioner Training, London
September 2019 
  • Co-delivered Stages 1&2 Professional Hoarding Practitioner Training, Birmingham

  • June 2019



  • Co-delivered Stages 1&2 Professional Hoarding Practitioner Training, Birmingham

  • March 2019

    • Delivered Professional Hoarding Practitioner Training - Levels 1 & 2 (Birmingham)
    • Read Citation for Sheena Crankson at Royal Borough of Kingston's Mayor's Community Award - http://www.adhdkingston.org.uk/about-us.html 

    December 2018


    October 2018


    September 2018


    July 2018

    • Delivered Professional Hoarding Practitioner Training - Level 1 (London)

    June 2018


    May 2018


    April 2018

    • Attended consultancy meeting with Hoarding UK (charity)
    • Attended Train the Trainer training (College of Public Speaking, London)
    • Gave a talk about hoarding and the Hoarding Ice-Breaker Form to Elmbridge Locality Team

    March 2018 

    • Attended the two day 18th Annual Conference on Hoarding & Cluttering in San Francisco, which included various talks and workshops:
      • Dr Michael Tompkins 
        • Pre-conference Workshop:  Applying CBT Techniques When Helping Clients De-clutter Their Lives
        • The Essential Coaching Skills: Sorting, Making Decisions, and Following Through
      • Dr. Monica Eckfield - Listening and Learning from Participants in the Help for Hoarding Treatment Study
      • Chia-Ying Chou - Experiencing Compassion-Focused Therapy for Hoarding
      • Donald Davidoff - Thinking Outside the Box: A Neurocognitive Approach to Hoarding Disorder
      • Hannah McCabe-Bennett - New developments in hoarding research: A novel approach using virtual reality
    October 2017 
    • Attended  NLA Landlord Foundation Course (1 day) & NLA Safer Homes Course (1 day), London
    July 2017

    June 2017
    • Attended "The Autism Show" in London
    May 2017

    April 2017
    • Started working with Surrey County Council to produce a Hoarding Protocol
    • Attended Emotional Resilience for Practitioners training (Changing Lifecourse Training & Coaching)
    February 2017
    • Attended a fascinating talk on Anxiety and ASD by Laura Kerbey of The Curly Hair Project, based on the excellent book "Asperger's Syndrome and Anxiety" by Alis Rowe

    November 2016


    April 2016
    • Ran a facilitated discussion on "How clutter affects health, and how to ask for help" at Newbury Hoarding Disorders Self-Help Support Group
    • Read "The Life-Changing Magic of Tidying: A simple, effective way to banish clutter forever" by Marie Kondo.  My verdict? Take from it what you think might work for you.  It's unlikely to make much of an immediate difference to people who exhibit hoarding behaviours or suffer with mental health problems.
    March 2016 
    • Attended Autism Spectrum Conditions training (Surrey County Council Training Team)

    • Ran a workshop on "How to ask for help if clutter or disorganisation affects your health" at the annual conference of The Association of Professional Declutterers & Organisers - APDO Conference, London

    Nov 2015
    • Attended Self-Neglect Awareness training (Surrey Safeguarding Adults Board)
    Oct 2015
    • Attended Safeguarding Awareness training (Surrey County Council Skills Academy)
    Sept 2015
    • Attended Making Safeguarding Personal - Care Act briefing training (Surrey Safeguarding Adults Board)
    June 2015
    May 2015    
    • Attended Training - Meeting the needs of Learners with High Functioning Autistic Spectrum Conditions in the Classroom - Level 3, ongoing (Positive Autism Support & Training)
    • Attended Emotion Gyms with a client (First Steps Surrey/Virgin Care/NHS)
      • Communication & Assertiveness 
      • Self Esteem
      • Anxiety
    • Co-trainer - Hoarding Behaviour Awareness Training for Surrey Family Support Services (Empathic Decluttering)
    • Attended Emotion Gyms (with clients) - (NHS Virgin Care) - Mary Frances Trust, Leatherhead
      • Communication & Assertiveness (NHS Virgin Care) - Leatherhead
      • Self-Esteem 
      • Anxiety
    Apr 2015

    Mar 2015
    • Attended Mental Capacity Act-Awareness Training (Surrey County Council)
    • Attended Hoarding, Safety & Ethics for Professional Organisers training (Yourganize)
    • Attended Dementia Friend training (Dementia Friends)
    • Presented a workshop on Hoarding and The Care Act 2014 at the Annual APDO Conference, London
    Feb 2015
    • Attended Care Act 2014 training – An Overview (Central Training)

    Jan 2015
    • Attended a CPD Event - Standardisation & CPD meeting of Prevention, Protection & Safety functions subject matter experts (Fire Service College)

    Dec 2014
    • Attended Mental Health First Aid Standard training (MHFA), Kingston

    Nov 2014
    • Co-trainer of Hoarding Awareness Training for Professional Organisers (Clouds End CIC)
    • Attended Motivational Interviewing training (Central Training, London)
    • Attended Working with Hard-to-Engage Service Users training (Central Training)

    Oct 2014

    Sep 2014

    Jun 2014

    Mar 2014
    • Attended Understanding Chronic Disorganization session at APDO conference (Yourganize)


    Memberships & Committees
    Current

    Previously














    Monday, 2 September 2019

    Cherry Rudge & Rainbow Red in the media & newsletters

    Cherry Rudge - owner of Rainbow Red - is a pioneer in the UK decluttering and organising industry.

    She is proud to have been raising awareness of the importance of using an holistic, person-centred, empathetic, non-judgemental, non-confrontational approach to help people affected by clutter since 2011.

    Positions held
    Here are a few examples of where you'll find her mentioned in newspapers, magazines, articles or interviews:

    September 2019
    2nd September - Talk Radio Europe - Breakfast show interview (with Hannah Murray) about hoarding disorder and the Hoarding Ice-Breaker Form (listen to the clip on the Hoarding Ice-Breaker Form website)
    https://hoardingicebreakerform.org/newsandevents/


    August 2019
    24th August - Mail on Sunday - "Hate chucking stuff out?  How to tell if you have a hoarding disorder, and the warning signs to look out for"
    https://www.dailymail.co.uk/health/article-7390927/How-tell-hoarding-disorder-warning-signs-look-for.html

    18th August - Sunday Telegraph - Stella Magazine - "My dad's dementia healed our broken relationship" 
    https://www.telegraph.co.uk/family/life/dads-dementia-healedour-broken-relationship/

    January 2019
    BBC Surrey Radio - 24th Jan 2019 - talking about Marie Kondo's Netflix decluttering programme, "sparking joy" and how it differs from working with people who have hoarding behaviours
    Fast foward to 2hrs 23mins - https://www.bbc.co.uk/sounds/play/p06w8g09

    May 2018


    May 2017
    Thanked for her contribution on the acknowledgement page of Jo Cooke's insightful book "Understanding Hoarding" (published by Sheldon Press).  

    • Diagram of how the ADHD brain works in the context of clutter, disorganisation & hoarding
    • Account of her experiences as the daughter of a hoarder, including clearing his home when he died


    January 2017

    Mentioned in an article by journalist Toby Walne that was published in The Mail on Sunday and The NZ Herald.

    Sept 2016
    Getting organised outdoors - article in House Beautiful magazine 

    January 2015
    Featured in Age UK Mobility's article on "How to Safely Declutter Your Home".


    May 2014
    Brooklands Radio - Interview - Just Women - 20-May-2014
    Promoting UK Hoarding Awareness Week - attending Parliamentary launch

    January 2013
    House Beautiful Magazine (Feb 2013 issue) - The Big Declutter (decluttering supplement)

    Brooklands Radio - Interview - Fabulous Women Show 
    15-Jan-2013 http://www.brooklandsradio.co.uk/FabulousWomen/CRudge130115.mp3

    October 2013
    Cherry's hints and tips are mentioned in an article entitled "Organising Outdoors" in House Beautiful magazine.

    November 2012
    apdo-uk Newsletter - getting organised for Christmas
    http://blog.apdo-uk.co.uk/index.php/2012/11/newsletter-november-2012/

    Healthy Planet (charity) - Stuff For Free Event - North London (Waltham Forest) 24-Nov
    www.healthyplanet.org/projects/stuff-for-free.aspx

    October 2012
    Surrey Today - 18-Oct - Transition Ashtead helping people clear out for Christmas
    http://www.thisissurreytoday.co.uk/Transition-Ashtead-helping-people-clear-Christmas/story-17108029-detail/story.html#ixzz2LqkNuZy5

    September2012
    apdo-uk Newsletter - office organisation
    http://blog.apdo-uk.co.uk/index.php/2012/09/newsletter-september-2012/






    July 2012
    apdo-uk Blog - What does it take to get you motivated enough to declutter and get organised?
    http://blog.apdo-uk.co.uk/index.php/2012/07/what-does-it-take-to-get-you-motivated-enough-to-declutter-and-get-organised/

    June 2012
    apdo-uk Newsletter - L of a lesson to beat moving day hell
    http://blog.apdo-uk.co.uk/index.php/2012/06/newsletter-june-2012/







    April 2012
    Anxiety UK (charity) website - Announcing partnership with apdo-uk
    http://www.anxietyuk.org.uk/2012/04/anxiety-uk-announces-new-partnership/









    March 2012
    Snapshot from the YouTube video showing Cherry (APDO's then Marketing & Partnerships Officer) addressing attendees at their annual conference.

    February 2012
    Serene Healing Blog - Feng Shui & "Mrs Beeton's Book of Household Management"
    http://www.serenehealing.co.uk/2012/02/feng-shui-mrs-beetons-book-of-household-management/

    March 2011
    Radio Wey interview on The Wonderful Wacky Wireless Radio Show - Carers Week
    https://soundcloud.com/#jandytimes/show-trailer-for-the-wonderful-wacky-wireless-show

    Friday, 3 October 2014

    Dementia awareness training

    There are plenty of things about my job which give me enormous amounts of pleasure, and the training I've received this week has done just that.  

    On Monday I was very fortunate to be a guest of Surrey Fire & Rescue Service for a half day practical training session that they're giving ALL their staff - both firefighters and office-based - in order to help them improve the way they help and protect people with dementia.



    I won't give the game away and explain what the training consists of, just in case you're due to attend the training and don't know what to expect!  Suffice to say it was BRILLIANT, disconcerting, disorientating, a little painful at times (but not in a kinky way!) and DEFINITELY not death by PowerPoint! 

    I feel very honoured to have been given the opportunity to attend Surrey FRS's training, and proud to live in a county where people with dementia can sleep safer in their beds, knowing that if there is a fire they'll meet firefighters who will be dementia aware, and should hopefully be more respectful and patient with them as a result.

    I came away feeling I had a much better understanding of the difficulties faced by older people, and particularly those with dementia.  Especially with things like not being able to see or hear things clearly, disorientation and feeling hopeless.


    I'm also now a total convert to the need for people with dementia to have a home safety visit from the Fire & Rescue Service, and fitting Telecare systems in the homes of people with Dementia. 

    I learned that of 8 deaths in Surrey caused by fire in the home, 6 of the people had dementia.  All of them had smoke alarms, but NONE of the smoke alarms were linked to a Telecare system.


    Telecare enables people to remain people to remain independent in their own homes, by providing person-centred technologies to support the individual or their carers.

    It costs from around £55 per quarter, and includes things like:

    Wearing a pendant alarm means that when the pendant is pressed, the alarm is activated and a call is automatically made to a care centre, this is staffed 24 hours a day, every day of the year. Without having to get to the phone, the caller can then speak to a specially trained operator, who will respond to their needs and organise appropriate assistance.

    As dementia is a progressive disease (contrary to what a social worker told me once....), it's important to get Telecare installed in a person's home sooner rather than later, so that they get used to having them around; otherwise they may not remember to use them in the event of an emergency, or attempt to disable them - which defeats the object of having the system to help keep them safe!

    Then on Tuesday I was in Guildford learning about "Understanding how to support people with dementia, & their carers", which was organised by Surrey County Council as part of their Dementia Friendly Surrey Campaign.


    As someone who is currently caring for a close family member with Alzheimer's, the training was very timely and often poignant.

    Not only was it a great opportunity to find out whether what I've been doing so far had been along the right lines (fortunately it seems it has - much to my relief), it helped me understand the enormous benefits - to me personally and for my business - of being able to respect, empower, engage and embrace people with dementia and their carers, in order to improve the quality of their lives - which was the key message of the day.


    The training was delivered by the wonderfully inspirational Sarah Mould, a former Occupational Therapist turned trainer and consultant in dementia care with The Dementia Training Company.


    I learned that the main risk for developing dementia is having poor blood circulation and high blood pressure, and that the most common cause of dementia is Alzheimer's Disease.

    And apparently it's not just the elderly who are effected - it's becoming more common for people in their 30s to be diagnosed with dementia, which is utterly shocking.  

    Equally shocking is the number of people aged over 65 living with dementia in Surrey alone.  In 2012 it was around 15,500, but by 2020 that figure is expected to rise to 19,000 (a 23% increase).  Extrapolate that type of scary statistic across the UK, and then across the world, and it becomes something of epidemic proportions.

    Which means an increasing number of my friends, family, colleagues, clients and potential clients will have dementia - a sobering thought.  And even though dementia isn't necessarily hereditary, of course there's a strong likelihood I could have it too one day.

    So if you come across someone who shows signs of looking as though or saying they're a bit lost or confused, or finding it difficult to explain what they're trying to do, or looking around anxiously, or having difficulty handling or understanding their money, it's quite possible they may have dementia-type symptoms.

    Also look out for things like difficulties with speech, or having problems with what you're saying, asking you to repeat yourself frequently, or - the classic - repeating themselves frequently too.

    Please don't turn away from these people, or ignore them - imagine how that would feel if someone did that to you under similar circumstances.


    • Be conscious of the cognitive difficulties a person may have
    • Make sure the environment supports effective communication - for example, you may need to move to an area which is quieter and less distracting for them
    • Keep calm and slow down when you're talking to them, at an appropriate volume  
    • Speak clearly at an appropriate volume, using excellent non-verbal communication (eg. calm facial expressions) and non-threatening body language
    • be specific about what you're telling them or asking them to do - DON'T spout lists at them as choices - it's unlikely they'll remember what you've said
    • Write things down to aid understanding
    • Use pictures to aid understanding (photos are better than drawings)

    I applaud what Surrey County Council is trying to do through its Dementia-Friendly campaign, and I am proud to be helping it become a more inclusive and supportive place to live for people with dementia, their families and carers.   

    This blog is just the first of many things I'm going to do to help cascade what I've learned this week.  

    What will YOU do to make YOUR community more dementia friendly?  

    Because what you do now to make it easier for people with dementia to live well could make life easier for you or your loved ones in the future.

    Food for thought...



    For more information: